I got the following email yesterday. As a respect I do not want to mention the writer name nor address. I want to help the person very very much. I wish I could give him/her for the best of my advices but I can't because....
1. I am not a doctor. Me myself I listen to my GI doctors from the University of Florida and above of all, I do and did pray. I still do or did everything what my doctors ask me to do. I fully trust all my doctors (my transplant doctor and the GI both), and the Liver Transplant Team of Shand Hospital, UF. Yes it is very very important to find a good doctor. I did mention or not I can't remember but I will share it again. My first Private GI doctor, he has his own clinic in Gainesivlle. I got told by him saying "You should go back to Bangkok and get the treatment over there. They have so much experiences." I was so surprised to hear that. I did asked him back one question..."What are you going to do if an American man got hit by a liver cancer? Are you going to tell him to go back to Bangkok???" By the blessing I got one of the top surgeons in the world.
2. With my little brain I do know that all the cancer patients situation are more or less different. I was so blessed that I had to take very little pain killer but I did had some sleeping problem. The accumulating the liquid in my lung which is normal to liver transplant patient, I had that. I got suck off twice!! Without lieing my faith put me through for Prednisone attacked also. The side effects of Prednisone is mood swing, stomach upset, swelling, skin change, diabetes, weight changes (Increase in appetite), muscle loss and bone damage and eyesight changes. I have some mood swing and took Activan for a very short time beside that the profit I am getting is my skin looks much much better, even lost weight (I maintain 120 lbs now). I truly thankful for not so much serious problems (like virus attacking) at all, actually till to day.
Diet, as my GI told me I can eat every thing but MODERATE is the key (remember I am sharing only my situation). Lately I have been eaten so much hot food. I do have that crazy desire like one week I would like to eat shrimp with garlic grilled or one week I would eat noodle soup or one week any kinds of curry. My problem is I will eat till I am so tired of it and changed to another kind of food.
3. Do you believe in herbal treatment? Honestly I do not. I do believe in that eating like garlic, tomato, onion, broccoli, ta ta ta ta is good but boil the roots of this and that, these I will never touch! (ie: take the tiger bone soup or cat liver fry or sneak blood). For my case as a cancer problem, I will never go for treatment with herbs unless recommended by my doctor. Remember I do not say that these are bad. What I means is if you believe in it, it is all up to you.I have been one of the lucky ones. My own liver transplant experience has allowed me to stay healthy and cancer free for two years.
In the future, I do not know what will happen, but I can tell you that I live very happily now. I value each day and every morning I pray.."Thank you my Lord Jesus for the new day!"
To my dear email friend, again I wish only the very best for you. My thoughts and prayers will be with you from now on. I pormise you that I will help you as much as I can.
Sent: Saturday, December 6, 2008 5:45:22 AM
Subject: Hi there
How are you doing lady? Today, I found you by goggling. Just typed "living with new liver" in google and found you. It is amazing to hear your life with new liver, because I am just advised to get kemo for my liver while I was trying so hard to get proper treatment from western medical since industry for 10 years.I got some possible idea for having new liver or kemo or using many herbs. My liver do not show cancer yet, but there is no medicine in the market right now, I was treated for three times already and being non responder.
I feel so good to see you and can you share me some experience on your transplant. Now I live in California. I have a daughter. My wife is also working in silicon valley.
I like your blog, it is beautiful.If you do not mind please email me back.
Thanks in advanced.